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Tuesday, September 6, 2011

Follow up...

As I sit here writing this I am scared...Layla has been asleep for almost 3 hours. Before last Friday I would have been in heaven. A long morning nap, when she hasn't take a morning nap in over a month would be awesome. Instead I have to keep telling myself it is ok, she was up late last night and is just tried.
Since last Friday Layla has been just fine. No signs that anything is wrong at all. I wrote the doctor an email telling her about my history of seizures and that I was wondering if this information changed anything? She wrote back a very nice email. The bottom line is she doesn't know what happened last week and she agrees that just plain dehydration probably isn't the cause. If it were after the juice and teddy grahams she would have been awake not sleeping in food lion. I later that day received a phone call from Layla's regular doctor. Dr Deimling had called her and notified her of the events so she could do a follow up. Yesterday we took Layla in to see Dr Sloik. Layla was active and crazy as usual. The Dr said she has ruled out dehydration completely and she believes that a seizure is a possibility. After a long talk we have decided that seeing a neurologist now is not needed and we will wait and see if it happens again. The Dr wanted to repeat her labs to see if they were normal now with her "acting" normal. We were off to the lab and I was scared to see them hurt my baby. I said to Jatovi" we are going to see the reaction we all wanted last week". Jatovi held her body and I held her arm, e were prepared for a fight....and go nothing again. They took 5ml of blood with Layla just watching her. She smiled at the lady when she put the bandage on her, didn't seem to mind at all. So maybe that wasn't such a sign last week after all. What kinda kid doesn't mind lab draws??
So we left believing it was probably a seizure and if it happens again I am to call 911( that's what the doctor wants me to do).
That lasted for 3 hours when the doctor called me. Her labs were all completely normal now, bicarb was 23 and fasting BS was 81. Perfect!! And after giving it thought she doesn't know if it was a seizure either. She said possibly metabolic since the bicarb was 15 at the time. The key is waiting to see if it happens again. She really just doesn't know what happened.
So I take from this the fact that everyone is just as confused as I was. And we just need it to not happen again!!!
As you can see she was just fine during her appointment!





Follow up to the follow up.....
Layla had more labs done this week (September 12 2011) at the advice of a metabolic specialist. We are still waiting for the results, however Layla is acting so well I really try not to even think about it.

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